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Home sick for years by Isabella Cimbleheck - Wed, 13 Sep 2017 14:50:25 EST ID:tiBuSQx/ No.518766 Ignore Report Quick Reply
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I'm likely going to be too sick to work (at least at a regular job, outside the house and routinely) for a very long time. I've been feeling depressed about it, so I thought I would ask you guys for ideas about ideas for what to do with myself in the meantime to give life some meaning.

Limitations: I don't have as much energy as most people and I'm often taken out of the world for a few weeks to a month at a time by illness. Thus, chaperoning a twice-a-week hike is not possible, for example.
Nigel Drannerchudge - Wed, 13 Sep 2017 14:58:31 EST ID:twMAaV8o No.518767 Ignore Report Quick Reply
Lots of free courses online, you could gain a new skill.

Futurelearn, coursera, edx, all offer free courses. OpenLearn (offered by the open university) does too and even gives free certificates.
Nigel Drannerchudge - Wed, 13 Sep 2017 15:21:04 EST ID:twMAaV8o No.518769 Ignore Report Quick Reply
A friend of mine was in a similar situation to you and she taught herself Spanish and Russian from home. Languages are a fun thing to learn, you can study through songs and books and films and radio etc. and no matter what field you work in they will look good on your resume when you are better :)
Basil Bloffingbury - Thu, 14 Sep 2017 14:51:05 EST ID:WV91K+Uu No.518788 Ignore Report Quick Reply
Musical instruments. Also listening to and studying music in depth.

Learn to code. I mean maybe it will land you a niche job, maybe you'll just be able to write shit to do your job for you half the time.

If you like numbers and shit study accountancy.

I guess that's a good start.
Samuel Grimstock - Fri, 15 Sep 2017 00:13:19 EST ID:L1SDMUBs No.518801 Ignore Report Quick Reply
Start by cleaning your room and sorting yourself out.
Hamilton Worthingshit - Fri, 15 Sep 2017 00:49:43 EST ID:94uHFygY No.518803 Ignore Report Quick Reply
you heard about this new thing online called pornography?
William Mingersotch - Fri, 15 Sep 2017 04:14:18 EST ID:/yZu2ciw No.518806 Ignore Report Quick Reply
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All are good suggestions, thank you! I've heard of coursera but not signed up for anything yet. I guess I could brush up on my German...it's been forever since I was in a class.

And unfortunately I probably won't ever be better. Just in a milder sort of sick. But that's okay.
David Nicklefuck - Fri, 15 Sep 2017 05:27:07 EST ID:BkkAdxMS No.518807 Ignore Report Quick Reply

jolly african-american what do you have
Thomas Daddlechork - Sat, 16 Sep 2017 05:59:00 EST ID:/yZu2ciw No.518814 Ignore Report Quick Reply
Ehlers-Danlos Syndrome from my mom and I was diagnosed with lupus in the last few years.
Samuel Fuckingbury - Sat, 16 Sep 2017 06:16:11 EST ID:3qSLtzLv No.518815 Ignore Report Quick Reply
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That's another cool thing about languages, you can work from home translating eventually, or you could do volunteer work translating.

Yeah, go back to German! I will warn you though, German is a really hard language! Spanish is easier, but learn the language you find you enjoy speaking and enjoy the idea of yourself one day speaking well.

Codeing is a great idea too.

Of course you'll have videogames, but in terms of avoiding depression make sure video games stay a really fun hobby, a one or two hour a day thing, because playing them long term for long periods of time results in depression pretty reliably.

Assuming you can't go out for walks...
There is also yoga for "the bed ridden". Yoga is stretching + mindfulness meditation. So learning to do lots of stretching, whether it is poses from yoga or poses from physical therapy, and combining that with breath control and focus and that is yoga. Lots of evidence showing it makes people happier. Stay away from power yoga, yoga fit, all that shit. Even yin yoga, they make you stay in poses for too long and despite what they say they are generally way too goal orientated. You want relaxing/gentle types of hatha yoga, or even plain old physical therapy poses that you just combine with mindfullness meditation.
Samuel Fuckingbury - Sat, 16 Sep 2017 06:23:20 EST ID:3qSLtzLv No.518816 Ignore Report Quick Reply
oh yeah with Ehlers-Danlos obviously hypermobilty is a problem so plain old yoga would be a problem. go straight to the physical therapist and ask them what type of stuff helps and what type of stuff makes everything worse. They are magic, seriously. A good one can teach you loads of stuff to do at home for the next few years in just one session.

I think part of us needs to get a bit of joy out of movement or we get depressed, and I like I said, physical therapy exercises + breathing and mindfulness meditation = yoga. So it's fun
Augustus Clenkinstock - Sat, 16 Sep 2017 08:48:50 EST ID:WV91K+Uu No.518817 Ignore Report Quick Reply
Oh definitely coding then.

I have a friend with EDS and she works nearly full time as a coder.

Gets more money than I do, has about a billion snakes (has successfully bred them) and plays 40K, various tabletops and LARPs. I think some people get it worse than hers but she's not of the "Oh i'm just a bit hypermobile" variety. She can easily sneeze and dislocate things. Musical instruments, language and coding work. In LARP she obviously isn't combatant very often and has got an outdoors/offroad wheelchair (I imagine this means a frame designed for high strength to weight and being easy to clean, special tires and maybe some suspension but I have no idea). Anyway she's probably more of a nerd than you but there's plenty you can do if your associates are tolerance of your occasional illness (she was one of the most reliable members of my D&D group and it was healthy mcripped who was the flakiest).

I know almost no one has heard of it but anyone who has a friend or family with it probably knows a LOT about it. Or maybe it's her. She talks about everything a lot and EDS falls within that. She has a fucktonne of hobbies, badger's her boyfriend's dick off and still has time to shitpost but not actually shit posts, she's pretty smart constantly, she can't always make it to work or drink or go on long walks but she manages to live a full life.

Anyway if you like numbers then DEFINITELY accountancy. Unless you're having a super bad day repeatedly you will be able to sit at home and study and in time you could do it as a part time/self employed job as long as your clients are good at actually giving you their records in a good time frame.

Music is actually not such a great option unless you can find one that doesn't rely on finger strength. I have above average joint mobility and it hinders me enough, my friend has hypermobility but not a connective tissue/collagen disorder and he can't play guitar as when he tries to fret it his fingers just bend and won't apply pressure. Being able to control dynamics and stuff on other instruments probably also requires reliable joints too. Programmable music is probably well within her capabilities though.
Samuel Fuckingbury - Sat, 16 Sep 2017 13:23:21 EST ID:3qSLtzLv No.518823 Ignore Report Quick Reply
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xylaphone, harmonica, bells, vibraphone, triangle, jug, and of course, computer music
Alice Caggleham - Sat, 16 Sep 2017 15:06:56 EST ID:qbos02Rd No.518825 Ignore Report Quick Reply
apparently, you're also good at writing. i'd recommend either being a scholar (you can learn real scholarship online nowadays) and get any kind of degree just for showing, or writing. Writing is one of the MOST NOBLE THINGS human things do, not to mention that your pain will only increase the profoundness of your writing
Alice Caggleham - Sat, 16 Sep 2017 15:17:33 EST ID:qbos02Rd No.518826 Ignore Report Quick Reply
but most importantly, you can do it. You are a human being. A human being can do anything. It is actually ridiculous what you can achieve. Remember the infinite love the universe has for you. This should give you more energy and vitality. And fight the battles.

In the technical-practical level, one should always devise a plan (after deciding on the goal). For instance, if you decide you want to learn an instrument, you could divide up your week time into slots, like school, such as mon - 9 until 12 = practice, 13 until 15 = music reading, 15 until 18 - practice and appreciation, etc...

I recommend, also in regards to energy and vitality, the reading of sacred texts, such as the gospels, the buddhist scriptures, the bhagavad gita. They help. They have helped humans for millenia.

You can do it!
Alice Caggleham - Sat, 16 Sep 2017 15:18:45 EST ID:qbos02Rd No.518827 Ignore Report Quick Reply
" It is actually ridiculous what you can achieve."

Meant to say: it is actually ridiculous the huge amount of things you can achieve.
Edward Packlefoot - Sat, 16 Sep 2017 22:58:28 EST ID:tiBuSQx/ No.518831 Ignore Report Quick Reply
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Ha, I thought I was mysteriously a yoga savant for a long time. Turns out I just have a weird health condition. I meditate a lot because I have some mental health problems for which it is one of the only lasting solutions. It is great, one of the best changes I've made in my life.

How have you seen video games cause depression in long sessions? I thought about this today and I think you're actually right but I don't know why that would be.

Your friend sounds cool. I always thought LARPers and tabletop gamers were the cool kids growing up because I was too shy to do organized social activities/storytelling like that with people.

I guess I'd narrowly consider SLE my primary condition at this point. I have Classical EDS and mine isn't...terrible actually, at least compared to some people--only a few of my joints are extremely screwy (disclocating a lot as opposed to sprains/strains). Unfortunately, one of those is my hip joints, so I also use a wheelchair part-time. I don't know if hers is manual or power chair. I think you're probably exactly right about specs re: offroad, but I don't know what that would mean for sure in the context of a manual chair. I've seen the manual chairs with mountain bike type tires though; they look badass.

I used to love coding when I was in middle school and I should try to get back to it again. I stopped doing it because the guy who taught me and I had a big falling-out, and it...like hurt me to do it? I know that seems weird. Anyway, I was doing C+ at that time and I don't even know what I would begin with now. Numbers I do like and the accountancy thing is something I will actually look into. I'd never considered that before. I've probably forgotten all my math now; it's been so long since I had to take it. Music I'm categorically bad at, but maybe I'm just psyching myself out. I've tried drums, mountain dulcimer, and viola and all have flopped.

Wait, why do you say that? And what do you mean by a scholar? Does this have a meaning other than "one who is studying something"?

I don't even know where I would start re: sacred texts. I guess my brother likes kabbala stuff so I could ask him about that. I also started the Koran and liked much of it but never finished, and I read some about Mami Wata over summer.

Organizationally I'm actually quite sloppy. I make schedules that are unrealistic and then don't keep to them. Not sure what the cure for that is.

Thank you for the pep talk about human potential. I feel like trash a lot of the time. Got right out of college and promptly fell on my face unable to even get to the bathroom reliably, much less do an office job or go grad school or any of it. I read a lot of history since and tried to tell myself learning at home was equally worthwhile in the grand scheme but it's hard not to feel less valuable when I see people having Normal Person Lives and that even feeling better than I did, I still can't get the same amount of adult life list boxes checked off. A lot of my experiences are more private than for other people, ie only myself or my partner knows about them, and that feels less important somehow.
Edward Dunkinman - Sat, 16 Sep 2017 23:25:20 EST ID:MUKKLYzW No.518834 Ignore Report Quick Reply
Start a YouTube series
Basil Fipperman - Sun, 17 Sep 2017 03:18:18 EST ID:qbos02Rd No.518838 Ignore Report Quick Reply

regarding sacred texts, i'd recommend the bhagavad gita, that's how i started. By scholar i mean a professional student of a topic. Since you read a lot of history, you could become a history scholar, and write about it. You already have a degree, so you're good, man, it would be realistic to try to do this.

With regards to organization, unfortunately we all suffer from it. Since you already know it, the next step is to make a more realistic (perhaps even very easy) schedule to begin with, and build from there. But first, in order to even do this, you need to find love. Love for something, love from something, love for life and from life, from the universe and for the universe.

The thing about humans is, we are full of contradictions. We are trash. But we are also the light of the world. The human condition is definitely not easy.
Hedda Memmlefoot - Mon, 18 Sep 2017 19:33:22 EST ID:tiBuSQx/ No.518855 Ignore Report Quick Reply
I definitely understand what you mean about social skills suffering. I'm not entirely cut off from other people or anything, but I can easily go a day without a face-to-face conversation and I always feel like I'm missing some element of normal conversational skill that my peers have. Sometimes it takes a moment to jumpstart speech when I've been out of the world for a while and I see a real person again. If I went to a party or something I would probably feel so overwhelmed by the number of humans around I'd enjoy nothing.

My partner is also a spoonie and we knew each other when I was less sick, as roommates. I also met a guy at the grocery store (we're poly) who I thought was totally disgusted by me but it turns out just likes me and also has an undisclosed invisible illness. I highly recommend dating and befriending other disabled people; they're often very nice human beings. think it's possible for important people to crawl out of anywhere, a forum or yeah, the pharmacy you go to all the time. It just takes a while.

>By scholar i mean a professional student of a topic. Since you read a lot of history, you could become a history scholar, and write about it. You already have a degree, so you're good, man, it would be realistic to try to do this.
I had NO idea this even existed. Thank you!
Hedda Memmlefoot - Mon, 18 Sep 2017 19:42:32 EST ID:tiBuSQx/ No.518856 Ignore Report Quick Reply
*days without
Clara Gablingchun - Tue, 19 Sep 2017 10:43:30 EST ID:gHOhu/Xd No.518867 Ignore Report Quick Reply

I never understood the Gita. Arjuna gives all these reasons not to kill people and then Krishna's like, "but you know... you really should though." Then Arjuna's like, "Well you have a good point."

Worst plot twist ever.

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